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Local
Support Groups
ASHAYLEE GLEN'S "Local Support
Groups"
includes the following;
1. Los Angeles and
Orange County Support Groups.
Autism
Blogger is a support Blog for
parents, caregivers and people on the autistic spectrum.
Click on the logo
. The
website's RSS feed can be read right beneath the autism support groups that
are listed below.
Autism/Asperger Syndrome
Asperger Syndrome Support Group
c/o Autism Society of Los Angeles
Web site: http://myweb.lmu.edu/jdevine/as/Index.htm
3975 Landmark Street
Culver City, CA 90232
Contact Fran Goldfarb at 310-543-5064
Meets monthly at Julia Ann singer Center in West Los Angeles
Los Angeles Asperger Syndrome Parent Support Group
3200 Motor Ave., Los Angeles, CA 90034
Contact person: Fran Goldfarb (310) 543-5064
E-Mail: beadsme@verizon.net or jdevine@lmu.edu
Meetings are 7-9 PM the 2nd Wednesday of every month at Julia Ann Singer.
(Vista del Mar) Meetings are free and no reservations are necessary. Call
for information.
Autism Society – LA Chapter
P.O. Box 8600
Long Beach, CA 90808
Contact Caroline Wilson at 562-804-5556
Autism Society for the Greater Long Beach/Whittier areas
Contact person: (562) 982-9129
This group offers support, training and information for parents of
individuals with autism. Call for information on meeting or to be added to
the mailing.
Orange County Asperger's/High function Autism support group meets every
second monday of the month at saddleback church
1 saddleback parkway,
Lakeforest CA.
Contact: Dr.Pontius
(949) 454-6301
AGUA (Adults Gathering United and Autistic)
A support group for people on the spectrum. Meetings are 3rd Saturday of
every moth at 1:00
Contact: Art Ringwalt
Phone: (818)840-9592
Email: arthur122@earthlink.net
Southern Orange County Autism Support Group
Contact Beverly Lee
Phone:(949) 249-9277
South Bay Autism Support Group
21231 Hawthorne Blvd., Torrance, CA 90503
Contact person: Devan
Brothers (310) 543-0648
Maria Garibay (310) 792-4586
2. Autism Support Group Blogs.
3. Other Disability
Support Groups.
Facilitated Communication Group
c/o Autism Society of Los Angeles
3975 Landmark Street
Culver City, CA 90232
Contact Marilyn Taylor Kremen at 323-665-0872
Meets at various sites
Aids
Mothers of AIDS Patients
20559 Palm Way
Torrance, CA 90503
Contact Janet McManon at 310-542-3019
Divisions in Whittier, Marina del Rey and North Hollywood
Attention Deficit Disorder
C.H.A.D.D. (Children with Attention Deficit Disorder)
UCLA NPI
300 UCLA Medical Plaza
Los Angeles, CA 90024
310-825-9989
Cardiac Disorders
Parents Heart Association
P.O. Box 779
Glendora, CA 91740
Contact Kathy Rogers at 626-963-2930
Cerebral Palsy
United Cerebral Palsy (UCP)
7630 Gloria Ave.
Van Nuys, CA 91401
818-782-2211 or 323-873-3366
Down Syndrome
Down Syndrome Association of Los Angeles, Inc.
8949 Reseda Blvd., #109
Northridge, CA 91324-3943
Contact Nancy Hall at 818-718-6363 or 800-464-8995
Down Syndrome Support Group of South Bay
21231 Hawthorne Blvd., Torrance, CA 90503
Contact person: Kerry Ryerson (310) 543-0686
Nilma Radford (310) 792-4588
Open to anyone with a son or daughter with Down Syndrome of any age. Parent
to parent support, information sharing, education, guest speakers. Group
meetings are held on the second Thursday of each month from September to
June, 6:30 – 8:30 p.m. at Harbor Regional Center.
Down Syndrome Association of Los Angeles, Inc.
315 Arden Ave., #25, Glendale, CA 91203
Contact Person: Gail Williamson (818) 242-7871
Fax: (818) 242-7819
E-mail: info@dsala.org
Website: http://www.dsala.org
Affiliate of the National Down Syndrome Congress and the National Down
Syndrome Society; newsletter, peer counseling, meetings, conferences, age
specific by-groups, education, information and training.
Down Syndrome Family Support Group of Long Beach
Contact person: John or Kim Snyder (562) 425-5969
For parents of children with Down Syndrome, John and Kim are facilitating
this Long Beach based group in their own home on the first Wednesday evening
of each month. The meetings are both supportive and informative. Family
oriented get-togethers are also offered, such as outings, parties and
picnics. Call them if you are interested in participating. Call the above
number for any changes in the summer
Epilepsy
Epilepsy Foundation of Los Angeles County
5777 W. Century Blvd. Suite 820 Los Angeles, CA 90045
Contact person: Guadalupe Corral-Leyve (800) 564-0445
The Epilepsy Foundation provides information and referral, counseling,
emergency I.D. tags and cards, consultation services, parent groups and
support networks, educational programs, seminars, materials, community group
meetings, and medical and social research.
This group supports individuals of all ages who have a seizure condition and
family members. Call the above number for information on support meetings
for parents, meetings are both in English and Spanish at various locations
in Los Angeles and Orange Counties
Fragile X
Fragile X Association of Southern California
Bimonthly meetings held at various locations
Contact Debra LeCover at 310-277-2735
Hearing Impairment
Greater Los Angeles Council on Deafness
2222 Laverne Ave.
Los Angeles, CA 90041
Contact Cathy McLeod at 323-478-8000 (Voice or TTY)
John Tracy Clinic
806 W. Adams Blvd.
Los Angeles, CA 90007
213-748-5481
Mental Illness
National Alliance for the Mentally Ill/Los Angeles
1336 Wilshire Blvd.
Los Angeles, CA 90017
Contact Annette Farsky at 323-413-1622
Muscular Dystrophy
Muscular Dystrophy Association
2800 28th Street, #302
Santa Monica, CA 90405
310-450-5607
Neurofibromatosis
Neurofibromatosis Family Support Group
Contact Vickie Pellerito at 310-370-4727
Prader-Willi
Prader-Willi California Foundation
601 Daily Drive, Suite #108
Camarillo, CA 93010
Contact Fran Moss at 800-400-9994 or 805-389-3484
Serves all of California
Rett-Syndrome
Rett Syndrome Support Group – Pasadena Area
Contact Maria and Bill Hyland at 818-790-4836 or Pep Sternberg at
626-584-1193
Sudden Infant Death Syndrome (SIDS)
SIDS Foundation
Southern CA Chapter
P.O. Box 90544
Pasadena, CA 91109
800-974-3752 or 626-568-3752
SIDS Peer/Parent Support Group
Contact Amy and Scott Neubauer at 310-523-3885 or Denise Bunn at
310-832-5991
Spina Bifida
Spina Bifida Association of Greater Los Angeles
Orthopedic Hospital
2400 S. Flower Street
Los Angeles, CA 90007
Contact Paula Herman at 213-742-1429 or 562-426-2747
Support in Spanish is available
Tourette Syndrome
Tourette Syndrome Association
Southern CA Chapter
6345 Balboa, Suite #290
Encino, CA 91316
Contact Julius Wechter at 818-344-0948
Turner Syndrome
Turner Syndrome Society
1313 5th Street SE #327
Minneapolis, MN 55414-4504
612-379-3607
Visual Impairment
Braille Child Development Services
3450 Cahuenga Blvd. West
Los Angeles, CA 90068
Contact Vicki Liske or Lynn Smart at 323-851-6122
For individuals who are legally blind
Braille Institute of America
741 N. Vermont Ave.
Los Angeles, CA 90029
Contact Vicki Lake or Lynn Smart at 323-663-1111 or 323-851-6122
For parents of infants/preschoolers who are visually impaired
Institute for Families of Blind Children
P.O. Box 54700, Mailstop 111
Los Angeles, CA 90054-0700
Contact Nancy Chernus-Mansfield at 323-669-4649
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